But I am enjoying just having time to spend with Ellie, instead of rushing her off to appointment after appointment. Things will change after her surgery for sure, and I'll be dreaming of this quet time again!
Monday 27 January 2014
27/01/14 - eerily quiet here
Considering we usually have a million places to be each week, thinks are very quiet right now. Ellie should be having her 12 month reviews with her specialists, but everyone wants to wait until after her palate repair. Which means we are in limbo. We are still waiting to hear from the respiratory specialist and the ENT, which is making me more and more angry as the days go by.
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